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Table 1 Key gaps in current knowledge concerning breast cancer prevention decision making by women at elevated risk

From: Decision making for breast cancer prevention among women at elevated risk

• Which prevention options and combinations women consider viable (prevention pathways)
• Women's reasons for low uptake of biomedical prevention interventions
• Explicit comparisons of prevention options and their effects
• How prevention behavior varies among subgroups of women, who differ according to:
 – Medically-defined or self-perceived level of risk
 – Geographical and cultural context
 – Race-ethnicity or socioeconomic status
 – Access to medical information or care
• Mechanisms that account for variation in prevention choices across subgroups
• Effects of emotions and psychological factors on women’s prevention decision making
• Effects of spouses, children, family, and friends on decision making
• Effects of exposure to cancer patients, support groups, or advocacy organizations on decision making
• Effects of exposure to genetic counseling and quality of communication with other healthcare providers on decision making
• Effects of previously unstudied factors on decision making: stigma, self-worth, desire to take control of health, personal exposure to experience of cancer
• Interactions among various drivers of prevention choice
• How women at elevated risk explain their own decision-making processes and needs
• Key methods to help women attain informed and empowered decision making